SYSTEMIC MASTOCYTOSIS RESOURCES

ONE OF THE MOST IMPORTANT THINGS TO REMEMBER?
WE ARE NEVER ALONE.

Black Woman Smiling As She Puts On Earrings

Not an actual patient

Get sm support and information from the mast cell diseases community

Systemic mastocytosis (SM) is a part of a larger collection of conditions called mast cell diseases. The independent resources below may be helpful in providing additional information about SM as well as other mast cell disorders.

EveryLife Foundation for Rare Diseases

This organization is dedicated to empowering the rare disease patient community to advocate for impactful, science-driven legislation.

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Global Genes

Global Genes is committed to providing information, resources, and connections to all communities affected by rare disease.

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National Organization for Rare Disorders

NORD is a patient advocacy organization dedicated to individuals with rare diseases and the organizations that serve them.

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The Mast Cell Disease Society

TMS is dedicated to providing support to patients, families, and medical professionals in our community and to leading the advancement of knowledge and research in mast cell diseases through education, advocacy, and collaboration.

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These resources are included as a reference for patients and do not imply endorsement of the company or its products by the groups listed. Blueprint Medicines is not affiliated with and does not endorse any particular advocacy group. We make no guarantees about the accuracy of the information provided on these websites or the quality of support provided. Descriptions have been provided by the corresponding organizations.