ONE OF THE MOST IMPORTANT THINGS TO REMEMBER? WE ARE NEVER ALONE.
Not an actual patient
Get sm support and information from the mast cell diseases community
Systemic mastocytosis (SM) is a part of a larger collection of conditions called mast cell diseases. The independent resources below may be helpful in providing additional information about SM as well as other mast cell disorders.
EveryLife Foundation for Rare Diseases
This organization is dedicated to empowering the rare disease patient community to advocate for impactful, science-driven legislation.
TMS is dedicated to providing support to patients, families, and medical professionals in our community and to leading the advancement of knowledge and research in mast cell diseases through education, advocacy, and collaboration.
These resources are included as a reference for patients and do not imply endorsement of the company or its products by the groups listed. Blueprint Medicines is not affiliated with and does not endorse any particular advocacy group. We make no guarantees about the accuracy of the information provided on these websites or the quality of support provided. Descriptions for each company were provided by the organization themselves.
There is ongoing research in SM. Learn more about clinical trials.